22 Aug 2012
"Without having experienced it personally, it is impossible to know the range of emotions that run through the minds of families when they find out their child has a condition that will result in the child's death soon after - or even before - he or she is born," Martin Laverty, CEO of CHA said this morning when he launched the website at CHA's annual conference in Perth.
The website, pnpc.org.au, offers parents and their families a wide range of resources, a chance to share their grief and emotions with others who have experienced the same bittersweet journey, as well as all important emotional, spiritual and practical help.
Parents faced with a diagnosis their much loved, much wanted baby is unlikely to survive are shocked and devastated. A time that should be filled with joy is suddenly filled with sadness. But until now there has been little support for parents or their families as they struggle to cope with such a grim diagnosis as well as the challenges of continuing with the pregnancy where the baby may die at any time or shortly after he or she is born.
"With the website we also aim to give families information about the range of conditions that may result in these diagnoses and offer advice on where they can find help," says Martin Laverty, CEO of CHA.
While those who have had to deal with anguish of their unborn child being diagnosed with a life-limiting condition, many parents who share their stories on the website speak of the joy of meeting and holding their baby, and of being a parent to a much loved child, if only for a short time.
The experience of those who met and held their baby and spent time with them, even when the child was still-born, will also help provide some parents with answers, comfort and a way forward.
With the support of CHA the website has been developed in collaboration with Catholic hospitals such as Melbourne's Mercy Hospital for Women, Calvary Healthcare and Brisbane's Mater Mothers' and Mater Mother's Private Hospitals, all of which provide a wide range of perinatal palliative care services to help families from the time of diagnosis until their child's death and beyond.
The website can be accessed by logging on to www.pnpc.org.au
shared from ARCHDIOCESE OF SYDNEY